Saturday, May 31, 2008

Please Continue in Prayer

Scott just called me and asked for all to be praying for Jonah. His blood pressure is very low and he has not responded to the drug that is suppossed to increase his blood pressure. They will be trying another drug today also. Thankfully his electrolytes are still good, but dialysis will be needed soon and they cannot do dialysis effectively if his blood pressure is as low as it is.
The Lord knows all the ins and outs so we can continue to ask for the Lord's wisdom and healing hand. Thank you all, and pray on!

Friday, May 30, 2008

no dialysis today

Jonah's Doctors decided not to put him through dialysis today because his blood pressure was a little low again. The good news is that he didn't need it today because his electrolytes were within a good range. As Amy said to me "The Lord is sustaining him". If his electrolytes are good tomorrow they won't do the dialysis then either. We are praying for his blood pressure to rise some and for healing where his surgery took place. He will eventually get on a different/better dialysis than the one he is currently experiencing. Scott and Amy are doing well, considering all they are going through. God is indeed their strength! Please keep them in your prayers as they continue to pray for their sweet baby boy and seek God's strength daily.
Thank you so much for interceding for Jonah and his family! Nancy (Nana)

Thursday, May 29, 2008

Day after surgery

Today Jonah only had about an hour of dialysis because his blood pressure was a bit too low. They will try again tomorrow. Scott and Amy got some much needed rest while Brad and I watched Jonah in the NICU. The Dr. that performed surgery came by and said he looked good, so of course it made us smile. Please pray that Jonah will be able to receive dialysis tomorrow and that his numbers will be good. Thank you so much for your continued prayers for him. We are leaning on God each hour and each day and trusting that Jonah is being touched by Him. We know he is. Psalm29:11 says " The Lord will give strength to his people; the Lord will bless his people with peace." We pray for sweet dreams filling sweet Jonah tonight. God Bless all you praying friends of Scott, Amy and Jonah!
Please remember to lift Robynn up and thank God for the miracles taking place in her life. We are so happy to hear the good news of yesterday. Please see her website at http://robynnsbattle.blogspot.com. Thank you Goodell army for your prayers also!

Wednesday, May 28, 2008

Successful surgery!

We tried to let everyone know earlier today but the site didn't work. We are so thankful for the outcome of this surgery today! It took about 3 hours and could have taken 7. The Dr. was very pleased with how it went. He removed his kidneys, repaired a hernia, placed the catheter for the future dialysis and overall seemed very pleased. A Dr. in the NICU later said that an xray of his lungs looked "beautiful"! We'll take it and are praising God and are so very thankful! They did caution Scott and Amy that the next few days could be a bit up and down, but this is normal after such a surgery. Pray for rest for Scott and Amy.. they will continue to need it as this is a very stressful and tiring situation. God is their strength and has gotten them through so much already. It was a great day and we are celebrating in our hearts. Thank you so much for your prayers for Jonah and the family. We have a long road ahead but know "with God all things are possible." Jonah has come so far in just 2 weeks! Happy 2 week birthday sweet Jonah! All our love, Nana and Papa

2 weeks old and surgery today!

Goodmorning everyone. Jonah is scheduled for surgery to start around 9:30am. It should last anywhere between 3 and 7 hours, so please pray for this today. He will be getting both kidneys removed, his hernia fixed, and also set up for dialysis through his abdomen. Pray for the doctors who will be working on him, Scott, Amy, and family for peace, and of course for little Jonah.
We will update tonight when we get home from the hospital. Thank you for your ferverent prayers. God is good! Praise the Lord at 11:04 Jonah will be 2 weeks old!!

Tuesday, May 27, 2008

prayer request

Robynn Goodell is having a lot of treatments and tests today so please pray for her. Tomorrow she will get results about how she' s doing with her cancer. Her site is robynnsbattle.blogspot.com . Please lift her up in prayer today.

Jonah had a good night last night and is scheduled for his kidneys to be removed tomorrow. Thank you for continuing in prayer for him.

Monday, May 26, 2008

Keep praying!

Please keep praying for Jonah because he had a minor setback last night. He had blood transfusions because of a catheter problem. He is once again on dialysis this morning for 4 hours and the surgery is still scheduled for Wed. to remove his kidneys. His numbers (gases) aren't as good as they have been, but our God is bigger than the numbers. They want to remove his kidneys because then he can also get the other dialysis in his abdomen started which is better/easier? Pray, pray, pray! God knows all about his little body. Psalm 139:13 "For you created my inmost being; you knit me together in my mother's womb."

Sunday, May 25, 2008

4 hour dialysis today

Jonah did well again today with his dialysis. Brad and I had to leave for 2 days which is very difficult for us. I have been there since his birth and have been able to see him almost any time. I miss them already but we will be going back for the kidney removal surgery scheduled for Wednesday. God is still in charge and we are still leaning on Him and praying for healing for little Jonah. A verse that has been a great help for me is Isaiah 26:3 which says "You will keep in perfect peace him whose mind is steadfast, because he trusts in you." We have seen miracle after miracle for the past 11 days and are looking forward to seeing what God has planned. Thank you so much for your continued prayers! Nancy (Jonah's Nana)

Saturday, May 24, 2008

Today's Progress

Today was day # 2 for Jonah's dialysis, and it went well. Praise the Lord!
He was on dialysis for three hours in the early afternoon, and they were able to collect more than 100 cc's. What an amazing improvement from the previous days!
I am amazed and encouraged by the mighty work the Lord is doing. I stand in awe.

"Praise the Lord! Praise the Lord, O my soul! While I live I will praise the Lord; I will sing praises to my God while I have my being. Do not put your trust in princes, nor in a son of man, in whom there is no help. His spirt departs, he returns to his earth; in that very day his plans perish. Happy is he who has the God of Jacob for his help, whose hope is in the Lord his god, who made heaven and earth, the sea, and all that is in them; who keeps truth forever." Psalm 146:1-6

I am beyond thankful for these past 11 days I have spent with my sweet sweet nephew. All I can do is praise the Lord.
Thank you for your prayers!!
-Aunt Alyse

Friday, May 23, 2008

Successful Dialysis

Praise the Lord, Jonah underwent his surgery to get the dialysis hooked up in vein in his neck. All went well. Thank you for praying. This morning before the surgery when the doctors were having a meeting, one doctor asked the main doctor why he was not more bloated if he was only urinating 10cc's a day. He said "Where is all the fluid going?" He also was asking the head doctor why his numbers were so good with all that he was going through. Normally his potassium level would be high and his is not. The head doctor said, " I don't know, and I'm not asking."

In other words the Lord is answering our many prayers for Jonah, and there is no explanation as to why he is doing as well as he is considering his problems. We know the Lord is good and is taking care of sweet Jonah. He has a plan! It is awesome to see God working in such a practical and 'in your face' way. Jonah is scheduled to have his kidneys out this coming Wednesday if all continues to go well. Please continue to lift him up. Thank you so much! And Thanks be to God, for He is good and His mercy endures forever!

Thursday, May 22, 2008

Dialysis in the Morning

Jonah has done well on the regulator ventilator and is scheduled to go into surgery to start his dialysis tomorrow morning sometime between 7:30 & 11:00 am. Please pray for him that this will go well and for the doctors hands. He will be having it through his neck instead of his abdomen at this point. Please also continue to pray for Scott and Amy. It is difficult to have their sweet baby going through this but at the same time it is the only option and we are all thankful that he has come this far. Praise the Lord for these last 9 days! We know the Lord has brought him this far and will continue to have his hand on Him.

Isaiah 41:10 says, " Fear not, for I am with you, Be not dismayed, for I am your God. I will strengthen you, yes, I will uphold you with My righteous right hand."

Wednesday, May 21, 2008

More news...

This is Nancy again. Alyse and I just returned to Scott and Amy's house from the hospital and found out right before we left that a dialysis procedure is tentatively scheduled for Friday. We are so thankful!! If Jonah does well on this ventilator he will have this procedure done to get rid of the fluids that are making his tiny body bloated. We pray this will be done and it is another step forward to healing for little Jonah. Thank you for your many prayers for him. I can feel them in the NICU as I watch him rest. He is such a sweet baby boy. "May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit."

1 WEEK OLD!

Today at 11:04 pm Jonah turned 1 week old. They were able to put him back on the regular ventilator this afternoon. We need to pray that he will be able to stay on it for 3-4 days. I was mistaken in my last blog, they won't take his kidneys out right away but they will do dialysis to get the extra fluid out of him and take down the bloating before they would remove his kidneys. So please pray that he does well on this ventilator.
Check out http://www.robynnsbattle.blogspot.com and pray for Robynn.
Thank you so much for your continued prayers. God is good!

Tuesday, May 20, 2008

Today Jonah's numbers are good. They had to put him back on the ossilating ventilator because of a little fluid accumulation in one lung. They are hoping to put him back on the regular ventilator tonight. Amy and Scott are able to put their hands under him and hold him on his bed. His blood pressure actually goes down when they do this. He likes it!! If Jonah is able to do well on the regular ventilator for 3-4 days they will remove his kidneys and have him on dialasis. We are so thankful that they can even consider doing this. Jonah is improving when no doctors thought that he would. Praise the Lord. Please continue to pray for his healing. It is so awesome to see the Lord at work and know he is holding little Jonah. Please also pray for rest for Scott and Amy. It is my prayer that each hour they sleep would count as two. Continue to pray for wisdom for the doctors and nurses. Thank you so much for continuing to pray!

Monday, May 19, 2008

A Good Day

This is Nancy, Scott's mom and Jonah's gramma (Nana). I Have been here with the family since Wed. May 14th when Jonah joined us. It's has been a bit of a roller coaster ride, but we are truly learning to trust God and not pay attention to the numbers and so many machines all around him. This has been a wonderful day and we are enjoying the blessings!! Jonah was able to get on a conventional ventilator and to the 2 or 3 Doctors "jaw-dropping" amazement his blood pressure went down instead of up when the change was made. One Doctor who has been looking after Jonah continued to come over and double check the numbers. We are so thankful to the Lord for this wonderful change. I was also able to view an ex-ray tonight before I left and it was such an amazing improvement since the first one I looked at on May 14th. His left lung, which was not working is now looking like his right lung!! And so it goes.....I know that the Lord is the great physician and He can do whatever He wills, but we will continue to ask, seek and knock on Jonah's behalf. Thank you all so much for your words of encouragement and prayers for our little blessing, Jonah. Scott and Amy are amazing parents already and we all feel the power of your prayers in the NICU (Neonatal intensive care unit). The nurses are asking to be with Jonah on their shifts. They all are falling in love with this little one.

Good news

I found out that yesterday an x-ray showed that Jonah had fluid in his lung, upon another x-ray it showed there was none. Doctors said there must have been a mistake with the x-ray. Praise the Lord for his healing touch!
Today Jonah is breathing with his ventilator set at 59% oxygen. Until now he has been breathing with it set at 100% oxygen. The goal is to be breathing at a lot less percentage of oxygen while still keeping his oxygen saturation level around 100%. Everytime they have tried to turn the oxygen level down he has not responded well. So we are thankful that he is now doing great at 59%. We also found out that today they will be putting him on a regular ventilator instead of the ossilating one that he has been on. This is great! Keep on praying, the Lord is working miracles!!

Sunday, May 18, 2008

Another day has come and gone. Things are looking the same with Jonah. We rest in the Lord and trust His perfect plan. Scott and Amy continue to treasure the hours with their precious son. Hebrews 13:5 says, " I will never leave you nor forsake you."
I am filled with love for Jonah, Scott, and Amy but I am out of words.
God's word says this, "Rejoice always, Pray without ceasing, in everything give thanks; for this is the will of God in Christ Jesus for you." 1 Thess 5:16-17

Saturday, May 17, 2008

Encouraged!

Tonight Scott and Amy had Pastor Steve and Connie come and we dedicated Jonah to the Lord. It was awesome for family and friends to gather around him and pray over him. Scott shared that God loves Jonah more than he and Amy do, and for that he is thankful. We had an awesome time of prayer. It is so wonderful that when we pray the Holy Spirit comes in and comforts and encourages our hearts. We have a peace knowing that Jonah belongs to the Lord whether he continues to live here with us or with God in heaven.

Just before we all came in for the dedication Scott and Amy came out of the NICU with big smiles sharing that Jonah had urinated 10 cc's which was more than the total of 3 he has done for the last 3.5 days. For all the little miracles we are thankful. Amy is a beautiful mommy enjoying her son, and Scott is a proud daddy. They are thankful for these precious days with their son. I am so honored to be able to share in this time with them. The Lord is pouring out his peace and love on them and it is so evident. He is truly upholding them during this time and the Lord is hearing our prayers. Thank you for your continued love and support through prayer. We are continuing to pray for a miracle that would 'drop all the doctors jaws', as pastor prayed, but we know that the Lord has a perfect plan for Jonah and we can trust Him in whatever it is.

This scripture was on my heart today: "Count it all joy when you fall into various trials, knowing that the testing of your faith produces patience. But let patience have its perfect work, that you may be perfect, and complete lacking nothing." James 1:2

I know it is Scott and Amy's prayer that God be glorified!

Tonights update

I came down on the train today to see my sweet nephew and hug my brother and sister in law. Right now Jonah's numbers are good but it has been an up and down day. The doctors had a meeting today with Scott and Amy and family and let them know that unless a miracle happens Jonah is not going to make it. At the end of the meeting when Scott was asked what his spiritual belief was he said, 'To be absent from the body is to be present with the Lord.' 2 Corinthians 5:8.

Scott and Amy have a peace knowing that Jonah is in the Lord's hands, it's completely out of their own hands and they are trusting in the Lord completely. We are blessed to have Jonah here and we continue to have hope because we know that the Lord can heal him if He wills it. Today Scott and Amy have been at his side, spending time with him. Please pray for rest for Amy and Scott and strength for the new day tomorrow. His mercies are new everymorning.

Friday, May 16, 2008

continue to pray

Amy is at the hospital with Jonah. This morning he needed a small blood transfusion and it wasn't looking good. Many prayers went up and now Jonah's numbers are good again. Please continue to pray for him. We have hope the Lord can pull him through. Thank you for your prayers.

Thursday, May 15, 2008

good news at end of day

We have news that Jonah's oxygen saturation is at 99. This is great. 100 is the goal, and earlier today his was only at 80. They also have given him a medication to help him to urinate, it has worked and he has definitely peed!! I just have to say that being able to see him yesterday after he was born was such a blessing. He is a beautiful baby boy, with pink skin and good muscle tone. I miss him already. Amy should be getting out of the hospital tomorrow and will be able to go see her beautiful little boy! Scott has been amazing. He has been going between the two hospitals seeing his wife and son. As our sister Alyse said, 'He is definitely filled with the Lord's strength'. Continue to pray for Scott and Amy as they lean on the Lord hour by hour. His grace is sufficient for us! Also pray for Amy for a quick recovery from the cesarean. And continue to pray for the Lord's healing touch on Jonah. I know He is holding him, and sustaining Him. Blessings to all you praying people out there.

Baby Jonah

This is Amanda Moore the proud aunt of my new nephew Jonah Scott Goodman. I wanted to create this site to update all who have been praying for Scott, Amy, and baby Jonah Goodman.

Jonah was born C-section on May 14, 2008 at 11:04 am and weighed 6 lbs 6 oz. He came out with some cries and some urine. This was a praise! Jonah was diagnosed with Polycystic Kidney Disease about 3 weeks ago and doctors said it was fatal and most likely he wouldn't survive birth. He is now over a day old! He was transported to the UCLA hospital and is in the NICU in good hands. Please pray for his lungs that he can eventually be able to breathe without the ventilator. Scott and Amy are trusting the Lord and thankful for everyone's prayers and support. I will update when we get new info.